10 Things I Wish I Knew After My Brain Injury
When my life changed after a brain injury, I had no map. Doctors told me about symptoms. Leaflets mentioned rehab. But nothing prepared me for the day-to-day emotional rollercoaster of recovery. Here are ten things I wish someone had told me sooner — shared in the hope that they help you feel less alone.
1. Recovery Isn’t Linear
There’s no straight line back to “how you were.” Progress can be slow, uneven, and frustrating — some days feel like setbacks. That’s normal. You’re still healing.
2. Fatigue Is Real — and Invisible
Brain fatigue isn’t the same as being tired. It can hit like a wall and stop you mid-sentence. It’s not laziness — it’s neurological. Listen to your body and pace yourself.
3. People Might Not Understand
Even loved ones might struggle to “get it” — especially with an invisible injury. That doesn’t mean your pain isn’t valid. Seek support from others who do understand.
4. It’s Okay to Grieve the Old You
Loss after brain injury is real — of skills, routines, confidence. You’re allowed to grieve that. And you’re allowed to rebuild a new version of yourself, at your own pace.
5. Your Emotions Might Feel ‘Different’
Mood swings, apathy, anger, tearfulness — they can all be part of the injury. It doesn’t make you weak or broken. It’s your brain adjusting. Help is available.
6. Noise, Light, and Crowds Might Overwhelm You
Sensory overload after brain injury is very common. It can feel like the world is “too loud.” Plan ahead, wear earplugs or sunglasses if needed, and give yourself breaks.
7. It’s Easy to Doubt Yourself
You may second-guess things you used to do without thinking. That’s okay. Confidence takes time to rebuild. Be kind to yourself — it’s part of the process.
8. You Might Feel Lonely — But You’re Not Alone
Isolation is one of the hardest parts. But there are others out there who feel the same. Reach out — to forums, support groups, helplines. Connection matters.
9. Small Wins Matter More Than You Think
Brushing your teeth, making a phone call, remembering a word — these are victories. Celebrate them. Your brain is doing something incredible: healing.
10. You Are Still You
Even if things feel different, even if you can’t do everything you once did — the essence of you is still there. You’re not lost. You’re evolving.
Final Thought
If you’re reading this after your own brain injury — know that you’re not alone. Healing is hard work. But it’s possible. Be gentle with yourself. You’re doing better than you think.
Want to connect with others who understand? Explore our Peer Support options or share your own story.